A documentary from a dad dealing with a life-threatening diagnosis for his child with a rare disease. Daniel is a visual storyteller and co-founder of Disorder: The Rare Disease Film Festival and the Disorder Channel, both dedicated to spreading awareness for patient families facing one of the more than 7,000 rare diseases. He considers his documentary on Menkes Disease his most personal and important film as it includes his son Lucas’ story. The film won the 2015 Rare Patient Story Award from Global Genes.